The Woman who got Dystonia from the Swine Flu Vaccine?
1. she got the seasonal flu shot not the H1N1 shot.
2. No medical or health expert has verified that her condition is in any way related to the flu shot.
3. Some physicians believe she is not suffering from actual Dystonia but rather a psychogenic form of the condition, i.e. a psychological disorder. (Psychogenic seizures are 3 times more common in women).
4. Although, no medical professional has made the claim that it was caused by the flu shot, the reporter of the initial story clearly wanted to sensationalize the story and plays with the language while avoiding liability.
"Doctors say she has a medical condition called dystonia that was triggered 10 days after she got a flu shot."
No mention as to whether the dystonia might be psychogenic, as many doctors claim.
No mention of what actually triggered the condition just that it happen 10 days after she got the flu shot.
He could have just as easily said it was triggered 10 days after she ate ice cream.
It's tragic but there's just no evidence that the flu shot had anything to do with it.
More and more even the press is saying "She believes" it was caused by the vaccine. Because there's no medical evidence that it was.
what is the difference between dystonia, tremor, and parkinson's disease?
Dystonia is one of the dyskinesias which are characterized by uncontrolled involuntary movements and diminished voluntary movements. Dystonia is can be a separate condition or part of another disease or syndrome.
I actually like the Wikipedia description: "Dystonia is a neurological movement disorder in which sustained muscle contractions cause twisting and repetitive movements or abnormal postures.
The disorder may be hereditary or caused by other factors such as birth-related or other physical trauma, infection, poisoning (e.g., lead poisoning) or reaction to drugs, particularly neuroleptics" or dystonia can be a side effect caused by the decreased supply of levodopa in the system or part of the "wearing off" as seen in Parkinson's disease. Dystonia often involves the body or head. The movement is often large, sweeping and very disruptive.
Tremors are rhythmic involuntary muscle movements which are not intentional. The tremor can fall into several types. There is a series of tremors known as essential tremor which can fall into several categories. Essential tremor can be a resting tremor or an intentional or action tremor which occurs when a person initiates an action. There are several more types of Essential Tremor. Tremors can involve any part of the body including the voice but commonly involve the limbs, especially the hands. The movements are smaller movements, more rhythmic than dystonia. Tremors can be symptoms of a condition, early warning signs, temporary, or a specific tremor disorder. In conditions other than S, tremors often appear bilaterally.
Parkinson's disease is classified as a neurodegenerative disorder. Although symptoms vary from patient to patient, tremor is one very common and easily recognizable symptom. In PD tremor usually begins on one side of the body, often in the hand and progressing to the leg and foot on the same side. As the disease progresses, the same symptoms appear on the other side of the body. Dystonia or Dyskinesia actually often occurs when levodopa wears off. It is often such symptoms as dystonias and extreme tremor which cause people to seek a surgical solution through DBS.
There are many other symptoms of PD. Slower movements, stooped shuffling gait, balance issues, stiffness, pain, swallowing problems, cognition problems, sleeping disorders, PD depression, hallucinations, freezing, vision problems, loss of sense of smell, constipation, urinary problems and ED are just some of the most common.
One of the best sources of information about your key words can be found at WeMove.org
Here you can find not only the best answers to your question but many more questions.
tardive dystonia drug induced in hospital who is responsible?
Unless the patient has a history of similar reactions to compazine and it's given anyway, then nobody is responsible.
If the doctor ignores the allergy history, then he/she is responsible.
Unfortunately, sometimes patients just have bad reactions to a drug.
Dystonias are sustained involuntary muscle contractions, often distorting body posture. Dystonias can be primary or secondary, and they can be generalized, focal, or segmental. Diagnosis is clinical. Treatment is with an anticholinergic drug or reserpine for generalized dystonia and botulinum toxin for focal or segmental dystonias.
Please see the web pages for more details on Dystonia.
distonias, or aberrent posturing can be caused by certain antipsycotic or major tranquilizers. In this case there likely isn't anything that can be done beyond trying different meds.
If this is a stand alone disease then you could try doing cleanses including full body, colon, blood, parasite, candida. Limit caffeine, sugar, any sugar substitutes, especially high fructose corn syrup.
I'm not to informed about this particular disease, so I'm not totally sure what the best steps to take are, but these should at least help the situation. H2o2 treatment may also help.
Here are a couple of places to start looking.
hope this helps.pp
Hello! I had a baclofen pump installed in my stomach for Dystonia. It makes a ticking noise. What is it?
I also have an intrathecal pump (with a mixture of baclofen and other meds). I occasionally hear mine tick, but after nine months I generally don't notice it any more. I've never actually asked, but have always assumed that it's just due to the mechanics of the pump as it meters out the correct dose for infusion.
Hope that helps.
You may be suffering from another type of localized Dystonia called Torticollis. (painful neck spasms) Often sufferers of Dystonia have more than 1 area involved. generalized dystonia can occur as a result of neurological disorders such as Parkinson's and strokes. It is difficult to treat but anticholinergic and benzodiazepine drugs often help. Biofeedback is also helpful.
Can a disease known as Dystonia turn into Parkinson's Disease?
Parkinson's is from a lack of Dopamine in the brain but the cause of it is not known.
The description above sounds pretty gloomy. The web site below is much more encouraging. An exerpt:
Dystonia is a movement disorder that causes the muscles to contract and spasm involuntarily. The neurological mechanism that makes muscles relax when they are not in use does not function properly. Opposing muscles often contract simultaneously as if they are “competing” for control of a body part. The involuntary muscle contractions force the body into repetitive and often twisting movements as well as awkward, irregular postures. There are approximately 13 forms of dystonia, and approximately 50 diseases and conditions include dystonia as a symptom.
Dystonia affects people of all ages and backgrounds. 50 diseases and conditions include dystonia as a major symptom.
Best wishes to your friend!
Is the story of the cheerleader who got dystonia after getting a flu shot a hoax?
Desiree Jennings decided it would be a good idea to get the seasonal flu shot, but ten days after her shot she got sick and was finally diagnosed with Dystonia. Read more on her Desiree’s heartbreaking story below. Do you think the flu girl is a hoax?
There are many that wonder if the flu girl video is a hoax? But sadly it appears to be all too real, especially for Desiree Jennings.
Jennings went to her local Safeway and got the flu shot as a precaution so she wouldn’t be out sick with the flu, but soon she became very ill.
“I got flu-like symptoms — nausea, vomiting, body aches, fever — then was lethargic for a week and started blacking out,” said Jennings, an AOL employee and Washington Redskins ambassador hoping to become a cheerleader.
Doctors were baffled as to why Desiree’s speech and walking were so affected. So Desiree saw neurologists, physical therapists and psychologists.
The Cheerleader who got Dystonia from Flu Vaccine, is it real?
While I won't be getting the flu shot this year and I'm not certain what risks it poses I do not believe that it caused that cheerleaders dystonia. Dystonia is a slowly progressing disease and is usually due to a genetic abnormality. Here is an article from the official dystonia foundation about their view on the disease and the woman mentioned in the video:
Don't get the flu shot if you don't want to, but as for dystonia I wouldn't worry.
No - dystonia occurs from abnormal chemical changes in the brain. The only way jerky dances are likely to affect your brain is if you are using ecstasy or some other drug that is linked to brain damage.
Does dystonia kill? After a few complications leading to Parkinson's disease?
First of all, Parkinson's does not kill so I would guess it is very unlikely that dystonia can kill. A person can die from complications associated with these diseases such as choking, but anyone can die of choking just as anyone can go outside tomorrow and get hit by a car.
Though I cannot answer if dystonia can lead to PD, similar but if you read this link below, you will find a little info on the difference between the two. PD is not always an inherited disease, but there are people with a mother, or father, or brother, sister who have had it and they have it, but many who have siblings with PD or PD like diseases never get it. A GOOD neurologist would be able to better assist in determining what is taking place and treatment.
Here is the link, hope this will help you some! Hugs
I'm not an expert, I'm a nurse and have taken care of people with various and sundry neuro-muscular diseases. From what i have read this is a condition that has a strong genetic component, but often the onset of symptoms is related to trauma of the neck and head. look at th link below, click to see the main site and click on causes/genetics.
The first reply was wrong, it isn't just stiff neck, but causes some strange posturing. Do talk to an attorney if you haven't already. did your drs. talk to you about the trauma trigger? were they willing to go on record, if they linked our trauma with the condition?
Just because you had an inborn propensity to a certain condition does not change that the trauma triggered the symptoms.
Injections have been used. Also depending on your age, remissions have occurred temporarily and some permanently. Read all you can to understand what you have. A lot is being done , but many treatments are experimental, make sure you know which are being used, do your homework.
Stiff Person Syndrome--it's a movement disorder caused by the body's immune system attacking the nerves, and results in uncontrollable movements, which are often worsened by loud sounds or emotional stress.
For more info, go to www.wemove.org. And see a neurologist immediately; Stiff Person Syndrome can easily become disabling, or even life-threatening if spasms of the chest interfered with breathing.
I need to find or develop a safe chat area for Dystonia -our area has been hacked?
There is an excellent forum that you can enter two ways. I have it saved in favorites and not bringing it up for some odd reason. You can search Brain Talk Communites Support forums and scroll down to Dystonia...you can try this url:
http://brain.hastypastry.net/forums. This is created by the Harvard Massachuetts Hospital and has numerous conditions and diseases on it. I use it for my Myasthenia Gravis which at this point is very stable. Let me know if you have a problem with it. Also have you gone into yahoo groups and searched in there?
Hope this helps. I do highly recommend the Brain Talk Communities. I checked and there are quite a few people in that forum.
Jean, I noticed you added me to your fav contacts. You can contact me at firstname.lastname@example.org.
do you know about dystonia? What is the best procedure to cure it?
Drugs, such as anticholinergics which act as an inhibitor of the neurotransmitter acetylcholine, may provide some relief. Clonazepam, an anti-seizure medicine, is also sometimes prescribed. However, for most sufferers their effects are limited. Botulinum toxin injections into affected muscles have proved quite successful in providing some relief for around 3-6 months, depending on the kind of dystonia. The injections have to be repeated and around 15% of recipients develop immunity to the toxin. There is a Type A and Type B toxin approved for treatment of dystonia; often those that develop resistance to Type A may be able to use Type B.
Surgery, such as the denervation of selected muscles, may also provide some relief. Recently, the procedure of deep brain stimulation has proved successful in a number of cases of severe generalised dystonia.
What is the probability of other children inheirting dystonia?
If dystonia is a genetic disorder there is different probabilities of getting the disease based on the parents genetics.
1. If both parents are carriers, the child has a 25% chance of having the disorder, and a 50% chance of being a carrier. There is also a 25% chance that they will have 2 dominant genes and will not pass it on or have the disorder
2. If one parent is a carrier and the other is not, then there is no chance that the child will have the disorder.
3. If one parent has 2 dominant non-disorder genes and one has the disorder, the child will not have the disorder but will definitely be a carrier (100% of the time).
There are different situations. Can you please elaborate on your question.
who can help out a person with a need for brain surgery for the disease dystonia?
It's always good to do a lot a research before doing surgery, especially brain surgery. Brain surgery is quite an extreme thing to do for dystonia. Are you seeing a dystonia specialist or just a general neurologist? There are a number of other treatment options. Don't let your doctors scare you, especially when you're feeling perhaps a bit helpless and down. Take charge of your body and do research on your own. You can always have the surgery - but take a deep breath and do not rush into it. See a dystonia specialist. Most other doctors don't know enough about dystonia conditions as such conditions are often rare. A specialist will be at the forefront of what can be done and will not just shove you into surgery.
A good place to contact is Columbia Presbyterian Hospital in New York City. They are at the forefront of dystonia research. Check out the website : http://www.nyp.org/health/dystonia.html
Also read up on research at:
Don't give up. It will get better. Believe in your own strength. Take control of the situation. Do NOT let it control you!
Also: You mention something about genetics. There is no such thing as genetic treatment for dystonia. It does not exist. There is no chromosome or chromosomal marker that can be identified as a dystonia carrier. You definitely need to see a dystonia expert. Otherwise you'll end up as a guinea pig. Dystonia can be alleviated and managed. Botulinum toxin (BOTOX) works great for many, many forms of dystonia. It could work for you too. Brain surgery should be and IS the LAST and FINAL resort. When ALL other options are COMPLETELY exhausted only. It's a high risk operation. Now you've got me worried. Please do not rush into anything, ok?
And lastly: this is not a disease. It is a condition. There is a difference. You're not sick.
Desiree Jennings so called incurable disease "dystonia" that was caused by a flu shot?
A number of neurologists found that her symptoms did not match the pattern for dystonia. The pattern seemed more like a psychogenic disorder. Psychogenic does not mean hoax. A psychogenic disorder is real to the patient. Her case was picked up by groups that wanted to exploit the situation.
What Do You Know About Dystonia: It's a Survey, Not Advice?
It's a neurological movement disorder where people get involuntary muscle contractions which force certain parts of the body into abnormal, sometimes painful, movements or postures. Dystonia can affect any part of the body including the arms and legs, trunk, neck, eyelids, face, or vocal cords and can affect anyone at any age. It is the third most common movement disorder after Parkinson’s disease and Tremor. Although there is presently no cure for dystonia, multiple treatment options are available. No single strategy will be appropriate for every case.
I have a focal dystonia of writers cramp with essential tremors. I've lost most fine control of my hands. The only thing that makes a big difference is Botox. I don't write at all but can still type. I take two meds for tremors. My doctor keeps mentioning brain surgery (I don't think so). The Botox weakens the back of my arm so I don't get locked in spasm.
This big thing is that you learn to adapt. It does not bother me anymore that I have hand problems. I'm a college professor and I have found ways of doing everything without a real problem. I correct papers using a tape recorder. I type all of my notes. I am given a classroom near my office so I don't drop things as much. I can't say it really bothers me. I wear a belt pack because I can't get keys out of my pocket. I have my secretary, or my wife, or my kids write for me. I have found ways of getting around everything. That is the secret. You accept it and find ways of moving on. You have problems but you don't let the problems bother you. You are still you and you have not changed.
Would a nerve block help to destroy the nerves that cause Cervical Dystonia?
I'm not sure that anyone woud wish to destroy nerves, per se, for cervical dystonia when there are options like botox that are effective in the treatment of such conditions.
Contact a specialist, e.g a neurologist, dermatologist, physiatrist for consult to see if you're a candidate for such treatment.
I wish you well.
Has anyone been diagnosed with or know what dystonia is?
Dystonia is a neurological movement disorder in which sustained muscle contractions cause twisting and repetitive movements or abnormal postures. The disorder may be inherited or caused by other factors such as birth-related or other physical trauma, infection, poisoning (e.g. lead poisoning) or reaction to drugs.
Symptoms vary according to the kind of dystonia involved. In most cases, dystonia tends to lead to abnormal posturing, particularly on movement. Many sufferers have continuous pain, cramping and relentless muscle spasms due to involuntary muscle movements.
Early symptoms may include loss of precision muscle coordination (sometimes first manifested in declining penmanship, frequent small injuries to the hands, dropped items and a noticeable increase in dropped or chipped dishes), cramping pain with sustained use and trembling. Significant muscle pain and cramping may result from very minor exertions like holding a book and turning pages. It may become difficult to find a comfortable position for arms and legs with even the minor exertions associated with holding arms crossed causing significant pain similar to restless leg syndrome. Affected persons may notice trembling in the diaphragm while breathing, or the need to place hands in pockets, under legs while sitting or under pillows while sleeping to keep them still and to reduce pain. Trembling in the jaw may be felt and heard while lying down, and the constant movement to avoid pain may result in the grinding and wearing down of teeth, or symptoms similar to TMD. The voice may crack frequently or become harsh, triggering frequent throat clearing. Swallowing can become difficult and accompanied by painful cramping.
What is the relationship, if any, between Dystonia and Epilepsy?
Dystonia can be caused by some of the same things as seizures are. Since Epilepsy is a disorder which covers a broad range of problems that cause seizures the two might be casually related this way. The only one thing that stands out positively is that dystonia can be a genetic disorder. Both can be caused by injury (specifically head trauma), inflammation, and a drug reaction. Since the cause of this is of yet unknown with the exception that it has a genetic connection and can be associated with environmental conditions too. There is allot more info available on wikipedia, and since this sounds more like a homework assignment please do the research that you find necessary. Good luck and God Bless
What diseases/conditions include dystonia as a symptom?
Torticollis is another name for your condition. Try a google on it. From what I found, it can be secondary to an injury, or it can be hereditary - does anybody in your family have it? Also, like any other neurological condition, it can be related to more serious conditions, like Huntington's disease. Hopefully this will not be true for you. Good luck.
Can dystonia and spina bifida acculta be connected to developing brain tumors?
No SB has nothing to do with brain tumors. However, you do need to see your neurosurgeon and have a full brain and spine MRI done to check for tether cord and arnold chiari malformation. Spina Bifida Occulta can cause either or both of those conditions.